Showing posts with label the best year yet. Show all posts
Showing posts with label the best year yet. Show all posts

Thursday, February 7, 2013

Milestones.


I was told by a therapist not too long ago, as we watched Jaxson struggle to reach out and grab a toy, that most ‘typical’ babies struggle with something like this for only a week, before it’s mastered and they move on. Jaxson has been struggling with it for well over a month. I watch his little brow furrow and his eyes cross as he tries desperately to grab a hold of that colorful little toy just inches away. He gets so close, pinches it with his fingers, then drops it. And so we begin again.
At first, hearing this statement hurt. My baby was indeed dragging behind, even if with something small. But I’ve had to stop myself. I’ve had to really think about this, lay-awake-at-night-tossing-and-turning think about this. What is it that matters most to me? That my child rushes through his milestones? That he grows up quickly? That he looks and functions like everyone else does? That he outgrows his need for his mommy sooner than later?
No, no, no, and definitely no.
Thinking back to when Jaxson was first born, when the joy and empowerment of bringing a child into this world was replaced by fear, doubt, and grief, I never once thought I would be where I am right now. I had hoped I would be, but could not see myself in these shoes. As guilty as I felt then (and even now for ever thinking it), I was not sure he would bring me happiness, or fulfillment; I was not sure I could love him or protect him or guide him as I would another child. I was terrified.
And there are still times, fleeting moments that pass too quickly to leave any significant change in the course of my day, that cause the slightest twinges of remorse, the slightest pin-prick of fear that I felt the day he was born. These are tiny moments I try not to notice. Like when I see Jaxson next to another baby his age or even a bit younger, I try not to compare. I try not to notice the ways in which he is slowly falling away from the “typical” path of a child his age. Now, don’t get me wrong, every child will do as they please. I’m not saying I expected him to follow in exact footprints. But there are some obvious differences now. I can see them when I observe him with another child. I can see how much more sturdy their head control is. I can see how easily they reach for a toy and hold it close to them. They roll over with more ease. They’re closer to sitting up or crawling. They take in solid food. I notice the shape of his eyes more too, the way they pinch at the corners. I notice the flatness of his nose. How short his arms are, how stubby his legs. I notice how much harder he has to work towards something that comes so naturally to others.
I was told by a nurse after he was born that comparing my child to another would be one of the biggest mistakes I could make. Though this can be true in some cases, some that I’ve obviously come to notice as of late, I think all of this has taught me something:
I can see now that I’ve been given the gift every mother wishes she could have: to keep their baby their baby just a little bit longer. I have been given a few extra sweet moments with my baby that I would otherwise not have. He may need me to support his head a bit longer, he may need a bottle a bit longer, and he may not crawl or run away from me too soon. I may have to carry him around while other moms are fighting to hold tight to their little one’s hands. He may babble longer before he completes a word. I may get a few more close moments of feeding in my arms instead of a high chair.
But there will come a day, as with any child, where he lets go of my hand too, a day where I fight to keep his tiny fingers in mine. He won’t need me to feed him anymore. He won’t need a physical therapist. He won’t need me to help him sit up, or grab things or hold his head up. He’ll beg me to let him put his own clothes on. He will bathe himself. One day, he will tell me those five bittersweet words that leave a mother crying both tears of joy and sadness, “I don’t need your help.” And I tell you what, all of those moments I got to hold onto just a little bit longer than most, the one’s that I feared so deeply at first, will be the sweetest and most cherished of them all.  
Because in a world where time is ever fleeting and the best moments are here and gone much too fast, I have this: A beautiful little boy that needs me just a little bit longer. Though sometimes I find myself hoping Jax reaches a new milestone just when a “typical” child would, or maybe even sooner, I am more at peace with his abilities (or lack of) with every new day. I have been given the beautiful gift of a few extra special moments to relish, and with his first half-birthday creeping up, oh how thankful I have become for all of his small differences.


Monday, December 31, 2012

Welcoming 2013



As I sit here on the final morning (or afternoon now) of what has been a very, very eventful year, with my morning coffee and sleepy-eyed Jax, it's hard to believe I wasn't doing just this same exact thing one year ago.

But that girl, her morning was nothing like mine is today. She crawled out of bed late afternoon, hungover and ready to cure it with something greasy and more rum and cokes. She slipped on a mini skirt, some gray tights, and a black top covered in gold sequins. She spent her night sampling Ryan's beers, and hauling a half gallon of cheap vodka around with some friends. She peed in a very dark room of a very sketchy, shabby, and decaying warehouse, into a bucket set underneath a chair with a hole cut through the seat while a band pounded away (illegally) down the hall. She fell and ripped her tights to pieces as the night came to a close, then spent some time hovering over the bathroom toilet at home before falling asleep. Happy new year!

That girl learned so much this past year. Though sometimes she misses those very classy and eventful nights of her past, she's learned way too much to settle for just those anymore.

That girl didn't know how it felt to stare down at an unexpectedly positive pregnancy test.

She didn't know what an abortion clinic looked like, nor how it felt to run out of one crying. Twice.

She didn't know how self-conciousness she'd feel standing in front of her college class in a baggy shirt, trying to hide what wasn't even a bump yet.

She didn't know she could cry so much on the half an hour drive to and from college every day for two months, while an unwanted baby grew inside of her.

But then, she did not know how amazing it was to feel her unborn baby move for the first time, or hear his heart beat.

She didn't know how cute baby clothes were.

She didn't know how cute a bowling ball size belly could look in a bikini.

She didn't know how it felt to have ultrasounds done every two weeks to check her baby for congestive heart failure.

She didn't know that ultrasounds could ever be anything short of magical.

She didn't know that a pregnancy could be anything less than perfect.

She didn't know what "poor biophysical profile" or "late decels" meant.

She didn't know how terrifying the words "emergency csection"could be, especially six weeks early.

She didn't know how empty she could feel just moments before meeting her baby.

She didn't know how important it was to hear that first cry.

She did not know how it felt to hold her baby for the first time, the baby she thought wasn't going to make it.

She didn't know what hypotonia, or almond shaped eyes, or a sandal gap meant.

She didn't know what a newborn with Down Syndrome looked like.

She did not know how it felt to grieve for the death of a child that was alive just across the hall.

She didn't know of the heartache and despair a simple diagnosis could bring.

She didn't know how a smile from a tiny, thriving, little baby boy that looked just like his daddy, could quickly turn that heart ache to guilt, and then to the deepest love.

She didn't know how to read a heart monitor, or watch oxygen saturation numbers like they'd suddenly disappear.

She didn't know what an ASD or VSD meant.

She didn't know how to put down a nasal-gastric tube in a three week old.

She didn't know what a normal platelet count was.

She didn't even know how to change a diaper, or give a sponge bath, or bottle feed. And she certainly didn't know how to be patient enough to wait three months to finally get her baby to nurse. She didn't know it would be so important to her.

She didn't know anything about milestones, therapies, ENT visits, echocardiograms, or fine and gross motor skills.

She didn't know how much she'd love getting her baby out of his bassinet in the middle of the night when he greets her with the biggest smile through all of his tears.

She didn't know how it would feel when strangers cooed over her baby, she didn't know it would make her anxious instead of proud.

She didn't know how it would feel to want to hide her innocent baby away from a world of skepticism and harsh realities.

She didn't know she'd ever want to punch a nurse for simply doing her job.

She didn't know she'd find a baby's cry so cute, or praise him for pooping.

She didn't know she could be so proud of stretch marks.

She didn't know that a night spent in with her son would trump any party she could ever attend.

Mostly, she didn't know she'd ever be a good mother, or even a mother at all.


As I wave goodbye to this year through a warm haze of close friends and good music and all of the love in the world, it's bitterweet. I'm sad to see such a great year of personal growth and love come to a close, yet excited to welcome another year of what will continue to be a learning experience. A new year of motherhood, poopy diapers, therapy sessions, milestones, doctor appointments, scary moments, tears, hugs, and the biggest baby smiles. And soon enough, baby laughs too (I've been waiting and tickling away)!

Cheers to the new year! May all of your 2013's be as fulfilling as mine is sure to be!