I was told by a therapist not too
long ago, as we watched Jaxson struggle to reach out and grab a toy, that most
‘typical’ babies struggle with something like this for only a week, before it’s
mastered and they move on. Jaxson has been struggling with it for well over a month.
I watch his little brow furrow and his eyes cross as he tries desperately to
grab a hold of that colorful little toy just inches away. He gets so close,
pinches it with his fingers, then drops it. And so we begin again.
At first, hearing this statement
hurt. My baby was indeed dragging behind, even if with something small. But
I’ve had to stop myself. I’ve had to really think about this,
lay-awake-at-night-tossing-and-turning think about this. What is it that
matters most to me? That my child rushes through his milestones? That he grows
up quickly? That he looks and functions like everyone else does? That he
outgrows his need for his mommy sooner than later?
No, no, no, and definitely no.
Thinking back to when Jaxson was
first born, when the joy and empowerment of bringing a child into this world
was replaced by fear, doubt, and grief, I never once thought I would be where I
am right now. I had hoped I would be, but could not see myself in these shoes. As
guilty as I felt then (and even now for ever thinking it), I was not sure he
would bring me happiness, or fulfillment; I was not sure I could love him or
protect him or guide him as I would another child. I was terrified.
And there are still times, fleeting
moments that pass too quickly to leave any significant change in the course of
my day, that cause the slightest twinges of remorse, the slightest pin-prick of
fear that I felt the day he was born. These are tiny moments I try not to
notice. Like when I see Jaxson next to another baby his age or even a bit
younger, I try not to compare. I try not to notice the ways in which he is
slowly falling away from the “typical” path of a child his age. Now, don’t get
me wrong, every child will do as they please. I’m not saying I expected him to
follow in exact footprints. But there are some obvious differences now. I can
see them when I observe him with another child. I can see how much more sturdy
their head control is. I can see how easily they reach for a toy and hold it
close to them. They roll over with more ease. They’re closer to sitting up or
crawling. They take in solid food. I notice the shape of his eyes more too, the
way they pinch at the corners. I notice the flatness of his nose. How short his
arms are, how stubby his legs. I notice how much harder he has to work towards
something that comes so naturally to others.
I was told by a nurse after he was
born that comparing my child to another would be one of the biggest mistakes I
could make. Though this can be true in some cases, some that I’ve obviously
come to notice as of late, I think all of this has taught me something:
I can see now that I’ve been given
the gift every mother wishes she could have: to keep their baby their baby just
a little bit longer. I have been given a few extra sweet moments with my baby
that I would otherwise not have. He may need me to support his head a bit
longer, he may need a bottle a bit longer, and he may not crawl or run away
from me too soon. I may have to carry him around while other moms are fighting to
hold tight to their little one’s hands. He may babble longer before he
completes a word. I may get a few more close moments of feeding in my arms
instead of a high chair.
But there will come a day, as with
any child, where he lets go of my hand too, a day where I fight to keep his
tiny fingers in mine. He won’t need me to feed him anymore. He won’t need a
physical therapist. He won’t need me to help him sit up, or grab things or hold
his head up. He’ll beg me to let him put his own clothes on. He will bathe himself.
One day, he will tell me those five bittersweet words that leave a mother
crying both tears of joy and sadness, “I don’t need your help.” And I tell you
what, all of those moments I got to hold onto just a little bit longer than
most, the one’s that I feared so deeply at first, will be the sweetest and most
cherished of them all.
Because in a world where time is ever
fleeting and the best moments are here and gone much too fast, I have this: A
beautiful little boy that needs me just a little bit longer. Though sometimes I
find myself hoping Jax reaches a new milestone just when a “typical” child
would, or maybe even sooner, I am more at peace with his abilities (or lack of)
with every new day. I have been given the beautiful gift of a few extra special
moments to relish, and with his first half-birthday creeping up, oh how
thankful I have become for all of his small differences.

