Pre-sunrise cuddles. When my little squirmy baby succumbs easily to sleep and sinks peacefully into my chest. No struggle, no reaching for everything in sight. Just heavy eye lids and rhythmic deep breaths.... and maybe the occasional snore. These moments are few and far in between lately.
I remember holding him delicately in my arms in the NICU. I'd grasp his teeny hand and wait patiently amidst the cords and beeping machines for the handful of times he would peak up at me sleepily. I would keep his room light off to make it easier for him. It was always brief; just a flicker of his deep blue eyes before he'd surrender to exhaustion and melt into my arms once again. This was our daily routine and I lived for that tiny flicker of blue.
Now I can hardly get those eyelids to close. That flicker of blue is now endless, and the hours of cuddles have turned into a wiggly battle for affection. Or in his case, everything in the room that's the least bit interesting. Oh how he's changed. And in only six months... There's still so much to come!
But before I run off on a tangent and give paragraphs and paragraphs on the countless joys these past six months have brought me and how I can't believe there's so much more to come, I must go and enjoy this rare cuddle before he's suddenly a teenager.
Happy Tuesday!
Tuesday, February 19, 2013
Thursday, February 7, 2013
Milestones.
I was told by a therapist not too
long ago, as we watched Jaxson struggle to reach out and grab a toy, that most
‘typical’ babies struggle with something like this for only a week, before it’s
mastered and they move on. Jaxson has been struggling with it for well over a month.
I watch his little brow furrow and his eyes cross as he tries desperately to
grab a hold of that colorful little toy just inches away. He gets so close,
pinches it with his fingers, then drops it. And so we begin again.
At first, hearing this statement
hurt. My baby was indeed dragging behind, even if with something small. But
I’ve had to stop myself. I’ve had to really think about this,
lay-awake-at-night-tossing-and-turning think about this. What is it that
matters most to me? That my child rushes through his milestones? That he grows
up quickly? That he looks and functions like everyone else does? That he
outgrows his need for his mommy sooner than later?
No, no, no, and definitely no.
Thinking back to when Jaxson was
first born, when the joy and empowerment of bringing a child into this world
was replaced by fear, doubt, and grief, I never once thought I would be where I
am right now. I had hoped I would be, but could not see myself in these shoes. As
guilty as I felt then (and even now for ever thinking it), I was not sure he
would bring me happiness, or fulfillment; I was not sure I could love him or
protect him or guide him as I would another child. I was terrified.
And there are still times, fleeting
moments that pass too quickly to leave any significant change in the course of
my day, that cause the slightest twinges of remorse, the slightest pin-prick of
fear that I felt the day he was born. These are tiny moments I try not to
notice. Like when I see Jaxson next to another baby his age or even a bit
younger, I try not to compare. I try not to notice the ways in which he is
slowly falling away from the “typical” path of a child his age. Now, don’t get
me wrong, every child will do as they please. I’m not saying I expected him to
follow in exact footprints. But there are some obvious differences now. I can
see them when I observe him with another child. I can see how much more sturdy
their head control is. I can see how easily they reach for a toy and hold it
close to them. They roll over with more ease. They’re closer to sitting up or
crawling. They take in solid food. I notice the shape of his eyes more too, the
way they pinch at the corners. I notice the flatness of his nose. How short his
arms are, how stubby his legs. I notice how much harder he has to work towards
something that comes so naturally to others.
I was told by a nurse after he was
born that comparing my child to another would be one of the biggest mistakes I
could make. Though this can be true in some cases, some that I’ve obviously
come to notice as of late, I think all of this has taught me something:
I can see now that I’ve been given
the gift every mother wishes she could have: to keep their baby their baby just
a little bit longer. I have been given a few extra sweet moments with my baby
that I would otherwise not have. He may need me to support his head a bit
longer, he may need a bottle a bit longer, and he may not crawl or run away
from me too soon. I may have to carry him around while other moms are fighting to
hold tight to their little one’s hands. He may babble longer before he
completes a word. I may get a few more close moments of feeding in my arms
instead of a high chair.
But there will come a day, as with
any child, where he lets go of my hand too, a day where I fight to keep his
tiny fingers in mine. He won’t need me to feed him anymore. He won’t need a
physical therapist. He won’t need me to help him sit up, or grab things or hold
his head up. He’ll beg me to let him put his own clothes on. He will bathe himself.
One day, he will tell me those five bittersweet words that leave a mother
crying both tears of joy and sadness, “I don’t need your help.” And I tell you
what, all of those moments I got to hold onto just a little bit longer than
most, the one’s that I feared so deeply at first, will be the sweetest and most
cherished of them all.
Because in a world where time is ever
fleeting and the best moments are here and gone much too fast, I have this: A
beautiful little boy that needs me just a little bit longer. Though sometimes I
find myself hoping Jax reaches a new milestone just when a “typical” child
would, or maybe even sooner, I am more at peace with his abilities (or lack of)
with every new day. I have been given the beautiful gift of a few extra special
moments to relish, and with his first half-birthday creeping up, oh how
thankful I have become for all of his small differences.
Labels:
2013,
baby,
down syndrome,
jax,
jaxson,
new mom,
the best year yet,
trisomy 21
Sunday, February 3, 2013
Our week in a nutshell:
What an interesting week we've had.
Jax had his first visit from the physical therapist!
She was very impressed with his abilities, and even let out a "holy cow!" when she discovered he could lift himself up using her hands. I was one proud mama.
He discovered how much he loves sleeping on the couch (in the oddest yet cutest positions):
So dreamy.
He also learned how to fall asleep in his crib without me rocking him first. My heart broke a little... and I think I must have checked on him every other minute at least.
He discovered bubbles:
And television...:
(please take a moment to admire his adorable cardigan. I wish I would have gotten it in every size!)
He got to hang out with some friends:
The little girl in front is Karlee (in the blue). She's a week YOUNGER than Jax. He's just so teeny, not that I'm complaining. He's still in newborn/ 0-3 month clothing. Talk about getting my money's worth!
The poor guy had to endure his mommy ogling over how cute his wittle butt is:
Really though. How cute.
And as usual, he melted my heart:
Oh, those beautiful tired eyes.
And he decided he could be camera shy. Either he looks away, closes his eyes, or gives me the blankest of stares. Picture taking is getting rough:
He'll be five months old tomorrow too... oh lord. Slow it down, little man. Mommy's not ready.
Wednesday, January 23, 2013
An Ode.
At some point throughout these past four and a half months I blinked and now you're bigger. When did my 4lb 4oz 16in baby turn into a rolling over, laughing, smiling machine of an 11lb 22in little man? I wish I had a way to slow down time.
Monday, January 14, 2013
Sleep Deprivation Sets In.
Good morning!
Someone wouldn't sleep last night.... so we tried a late-night bath to soothe him to sleep:
Needless to say, I'll be sitting through my long day of classes today on only five hours of sleep. But with that smile, how can I regret not sleeping? These are the days I'll never get back, and I intend to soak them all in.
Now where's my coffee? Monday, how I loathe you.
Someone wouldn't sleep last night.... so we tried a late-night bath to soothe him to sleep:
Needless to say, I'll be sitting through my long day of classes today on only five hours of sleep. But with that smile, how can I regret not sleeping? These are the days I'll never get back, and I intend to soak them all in.
Now where's my coffee? Monday, how I loathe you.
Sunday, January 13, 2013
Prunes!
As this weekend draws to an unwelcome close, I find myself continuously telling myself to breath. What a crazy, crazy week it's been.
But! I survived my first week of classes as a mamma. I can do this. In between my classes three days a week, an overwhelming amount of homework, a cranky post-four month shots Jaxson, and locking my eyes in my car in Grand Rapids and thusly missing Jaxson's ENT appointment (and having to break the seal on my window in an attempt to rescue my keys before the sun set and the cold night night engulfed my little one), I survived.
It's quite difficult getting any homework done with Jax constantly watching me with his big wanting eyes from his swing or play mat, smiling every time my eyes meet his... Not to mention the consistently good mood he's been in very morning before classes. I have to rush to campus everyday. That boy has one magnetic smile.
Boy, do I miss those lazy stay at home mommy mornings. But with my precious free time with Jax quickly dwindling away, I leave you with this:
But! I survived my first week of classes as a mamma. I can do this. In between my classes three days a week, an overwhelming amount of homework, a cranky post-four month shots Jaxson, and locking my eyes in my car in Grand Rapids and thusly missing Jaxson's ENT appointment (and having to break the seal on my window in an attempt to rescue my keys before the sun set and the cold night night engulfed my little one), I survived.
It's quite difficult getting any homework done with Jax constantly watching me with his big wanting eyes from his swing or play mat, smiling every time my eyes meet his... Not to mention the consistently good mood he's been in very morning before classes. I have to rush to campus everyday. That boy has one magnetic smile.
Boy, do I miss those lazy stay at home mommy mornings. But with my precious free time with Jax quickly dwindling away, I leave you with this:
Operation: spoon-feed-prunes-in-between-feedings-to-help-with-constipation-because-mommy-was-really-excited-to-try-it-out obviously went well.
Enjoy your sundays!
Friday, January 4, 2013
4 months old already?!
My little ham is four months old today. Where has the time gone?
As of today he can:
-Roll over (he finally got the hang of it yesterday, perfect timing!)
-"Talk," and especially yell. If I walk away from him, he let's me know he's displeased.
-Giggle. Today was the first time, and it was the sweetest most heart exploding sound I have ever heard.
-Track objects/ people.
-Show excitement.
-Show decent head control.
-Almost roll from back to stomach.
-Locate his hands. Sometimes he lays there with his little hand in front of his crossed eyes and I just die.
-Grab toys, and smile at them/ become excited by them.
-Squirm and push me away so he can play... this happens much to often.
-Push off of things to scoot around the floor.
-Focus on faces and responsively smile. Especially at cameras. I've created a monster.
-React to noises.
I could probably go on. I'm just so proud. Down Syndrome aside, he's supposed to be six weeks delayed due to prematurity... yet, he's right on track. Very small, but right where he should be in terms of milestones, as far as I can tell. I'm one proud mama.
My, my, how far we've come. I wish I could show that girl four months ago how happy she would be now.
Labels:
2013,
baby,
down syndrome,
four month old,
jax,
jaxson,
love,
new mom,
trisomy 21
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